[Sundaycommunity] sending this for Martha Crean

Elizabeth Whelan erwhelan at icloud.com
Wed May 10 13:43:38 PDT 2023 

Zoe, Martha’s daughter, asked me to send this to the Community for Martha.
Elizabeth
Liz

Begin forwarded message:
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> From: The deVeber Institute for Bioethics and Social Research <bioethics.deveber=gmail.com at vrmailer3.com>
> Subject: Spring Update- New Project!
> Date: May 9, 2023 at 10:33:41 AM EDT
> To: ewhelan at sympatico.ca
> Reply-To: The deVeber Institute for Bioethics and Social Research <reply-aEmYB2JgjjBKTmt9VANwF5KPSplmLaTZI1NxWxFRBFcM=@u.vrmailer3.com>
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>  <https://cts.vrmailer3.com/click?sk=aEmYB2JgjjBKTmt9VANwF5KPSplmLaTZI1NxWxFRBFcM=/aHR0cHM6Ly93d3cuY2FuYWRhaGVscHMub3JnL2VuL2NoYXJpdGllcy90aGUtZGV2ZWJlci1pbnN0aXR1dGUtZm9yLWJpb2V0aGljcy1hbmQtc29jaWFsLXJlc2VhcmNoLw==/6-fpiIcuYngTQbOOZqKgsQ==&merge_field_type=(?x-mi:(?%3C=href=)%5B%5Cs%5D*%5B%27%22%5D(?%3Curl%3E%5B%5E%7B%22%5D.+?)%5B%22%5D)&href_id_source=vr2-href-id-source-1>
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> Greetings {FIRST_NAME|friends}!
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> For the past several months we've been researching and developing a new project that we are thrilled to share with you. 
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> Our research findings on palliative care accessibility in Canada have shown that 75% of Canadians would prefer to die at home, but only about 15% have access to home palliative care services. 
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> Based on this research, the deVeber Institute is creating a collection of Canadian palliative care services and stories, Echoes: Canadian Palliative Care Stories, to serve as a desperately needed, practical resource. ​
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> We hope that you enjoy learning more about this project and choose to support this invaluable work!
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> Echoes is a cross-Canada booklet series featuring interviews with doctors, nurses, families, and community members from coast-to-coast sharing their own stories on palliative care.
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> This project will provide resources on the first-hand experiences of patients, families, and medical professionals. Far too often, a person feels alone, isolated, and ill-prepared when faced with illness and the end-of-life. We hope that by fostering a deeper understanding of palliative care practices and resources, this can change.
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> Each booklet will represent an individual province/region and will include the following:
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> Quebec's Flawed Palliative Care System: A Doctor's Perspective
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> Dr. Justin Sanders is a palliative care physician in Montreal and is the Eric M. Flanders Chair in Palliative Care Medicine at McGill University.
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> Dr. Sanders spoke with the deVeber Institute on some of the key issues he has noticed in Quebec’s palliative care system.
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> “I think the biggest issue is the closely held association between palliative care and end of life care. It reflects a model of care that has been outdated for 15 plus years, which is the idea that there’s treatment for your illness and then all of the sudden it stops and you have palliative care. That is why people are scared of palliative care; it’s because they’re dealing with the abandonment of their medical team and also the arrival of a new medical team that they associate with the end of life,” said Dr. Sanders.
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> This outdated model of care is also reflected in the language used. “When I hear that a patient is quote/unquote “palliative,” it makes my skin crawl because we don’t say that a person is “cancer” or that a person is “dialysis”; no one is “palliative” or not,” Dr. Sanders stated.
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> It is well know that early palliative care intervention is most effective. “Functional status is the greatest predictor of prognosis, whether you’re on treatment or off. If you have medical treatment that is aimed at improving your functioning then it stands to reason that you are going to do better in general and potentially live longer,” said Dr. Sanders. Unfortunately, it is unlikely for patients to receive early palliative care in Quebec due to resource allocation by the government that leaves many without access to palliative care.
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> Please note this is an abridged version, the complete article will be included in the final project. 
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> The deVeber Institute always strives to expand its research and
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> lecture topics. Yes, we are a very small organization with big goals.
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> To meet these goals we rely on the support of donors - like you. 
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> We need your support!
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> Donations can be made through CanadaHelps by clicking below. 
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> We now also accept e-transfers to bioethics at deveber.org <mailto:bioethics at deveber.org>
> or via cheque to 4936 Yonge St, Suite 255, Toronto, ON,M2N 6S3.
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> All donations are tax-deductable and greatly appreciated.
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